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NOTES FROM LAUREN

(9/10/05)

Hi Everbody.  This is Lauren. After talking with my dad about writing some more, he suggested that I talk about what I do when I get chemo. 
 
I have both out-patient and in-patient chemo.  That means that sometimes I have to stay at the  hospital for more than one day (in-patient) for treatments and sometimes I get a treatment and go home (ou-patient).
 
I have both 5 day and 2 day in-patient stays.  So far I have done both stays twice.  I have to do each 3 more times before my chemo is done.
 
Once my counts are high enough, I check into the hospital.  As soon as I get settled into my room the staff begins giving me fluids through my port.  My port is like a pin cushion that is under my skin.  It has a tube that runs to a blood vessel close to my heart.  The nurses put needles into my port to deliver the fluids and chemo to my body. 
 
Every day that I stay in the hospital, I usually get 2-3 chemo treatments that take about 1-2 hours each.  At the same time I receive many bags of fluids.  I watch TV and movies and listen to my IPOD when I receive treatments.  Sometimes my mom reads to me.  I sleep during treatments too.
 
My floor at the hospital has a special play room for the patients.  They reserve a time for me to have the play room to myself so I am not exposed to other's germs.  I usually play X Box, Ninetendo, and PS2.  Sometimes I play foosball.
 
The chemo makes me really tired and sometimes it upsets my stomach and I get sick.  I take medicine to help my stomach, but sometimes it is not enough, I still get sick.
 
Out patient chemo doesn't usually bother me as much.  I get a simple "push" of a medicine.  It takes just a few seconds and then I get to go home.
 
Thanks to everyone for supporting me.  Hope to see you all soon.
 
Lauren

 

(9/7/05)

Hi Everyone, This is Lauren speaking.  On Tuesday I got 2 units of blood and 1 unit of platelets.  My color has come back, my lips are more pink, and I feel better.  I have alot more energy.  It takes what seems like forever for me to receive all of that blood.  It took five hours to receive all of that plus the time waiting for my turn to get started and the time it took to go through dismissal.  We were at the hospital from 8am to 4pm.  We started the day doing labwork.
 
My tutor's name is Steve. He is scheduled to work with me for an hour on the school days where I need to stay home.  I have to stay home because my immune system is low and it would be real easy for me to catch germs and get sick.  Steve is real nice.  We are working on the basics, math, spelling, social studies, language arts, and will have science later on.  I would rather be in school so I could see my friends.  But the one on one instruction is pretty swell.
 
Monday night we went to the Hartman ranch, it's a name we gave to a place they have in the country.  I got really tired on a walk but got my energy back with the blood that I received.
 
Thanks for posting notes.  Hope to see you soon.
 
Lauren